Holly Braithwaite, 34, of Teesside, is thought to be one of the youngest people with Frontotemporal dementia in the UK after initially thinking she had postpartum depression.
Image: National Brain Appeal)
Mom was diagnosed with dementia after suffering from what she considered postpartum depression – and doctors believe she is one of the youngest in Britain.
Holly Braithwaite thought the symptoms she had were related to the birth of her daughter Alba in 2019 – or to the thyroid problem she was having.
But after scans and tests, the 34-year-old was told she had Temporary Dementia (FTD).
“Dear” friends, Sophie Poulton, 33, and Kayleigh Spooner, 34, supported Holly, reports. TeessideLive.
Sophie, who is now helping to care for the young mother, said: “It will take some time for Holly to get a proper diagnosis.
“After several different tests and scans it has been confirmed that it is Temporary Dementia.
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National Brain Appeal)
“We were so shocked to hear that it was a form of dementia.
“Holly is so sharp, even now, she’ll know dates, birthdays, what we did during nights out when we were younger.
“That’s the surprising thing about FTD and some of these rarer forms of dementia. It’s not about memory loss and it can happen to younger people.”
Sophie and Kayleigh recently completed an eight-mile charity walk, with more than 80 people joining the journey to raise £ 7,000 for Rare Dementia Support.
National Brain Appeal)
The service was funded by The National Brain Appeal and it became a lifeline for Holly, husband Alex and her mother Chris after the giant diagnosis.
FTD is an extremely rare form of dementia that causes problems with behavior, personality, and language. It affects the front of the brain and can affect anyone, including the thirties, forties, and fifties.
Like other forms of dementia, there is no cure. The Rare Dementia Support offers tips and a safe place to meet for people with similar problems.
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It aims to empower, guide and inform people living with rare dementia, while also providing support to loved ones.
Sophie said: “The Rare Dementia Support team was a gift to those who care for Holly, offering her expertise and support to the family and so we knew we wanted to give something back.
“When Kayleigh and I went to Alex with our fundraising idea, he suggested we do that for The National Brain Appeal, which funds the service.
“We contacted a lot of people who know and love Holly to join us to celebrate her and help raise money for the charity.
“We also had the support of people who don’t know Holly, but just want to show that they care. We really wanted to make the day good, full of fun and laughter, just the way Holly would like it.”
She added: “Holly’s condition is progressing faster than any of us have anticipated. As family and friends we are doing everything we can to support her and create a safe, loving and caring environment for her during this frightening, confusing time.
“We are devastated and moved to see what is happening to our dear friend. We know there is no cure and we just want to be there for her and do everything we can for her, Alex, Alba, Chris and the whole family. “
If you would like to donate, please visit their JustGiving page.